Monday, June 17, 2013

Hi

My name is Megan. I'm sick. I've been sick for over 10 years and I will always be sick. Sometimes I'll be in remission, but at any moment, I can relapse. I have SLE and fibromyalgia. I spend most of my time resting and trying to keep my energy up. I often feel like just to keep up I have to run and run and run and I'm only able to recharge just enough to keep going. The title of this blog refers to my grandpa's advice- "If you're going to run your car on a quarter of a tank of gas, you better run it on the top quarter." He meant it literally, but I think it is a good reminder for chronically ill people. Don't make yourself sicker by trying to keep up with the Joneses. I'm not a Jones. I'm a Cottage and this is my quest for a comfy cozy life. (get it?? cottages are cozy????? ok sorry moving on...)

I belong to a group on facebook called My Invisible Journey and even though I like posting there, I felt like I was posting a lot and I don't want to bog everyone down. I want to be able to write out longer posts too if I need to. I don't really know what I expect to do with this or what I want out of it but I'm hoping that if I can just write stuff down it will help. Maybe it will help someone else to know they are not alone or maybe that all the wierd stuff they feel isn't in their head or because they are weak but a hidden disease.

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